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Monday, August 3, 2020 | History

2 edition of The information needs of chronically ill or physically disabled children and adolescents found in the catalog.

The information needs of chronically ill or physically disabled children and adolescents

Bryony Beresford

The information needs of chronically ill or physically disabled children and adolescents

by Bryony Beresford

  • 344 Want to read
  • 40 Currently reading

Published by Social Policy Research Unit, University of York in York .
Written in English


Edition Notes

Funded by the NHS Executive R and D Programme: Mother and Child Health.

StatementBryony Beresford and Tricia Sloper.
ContributionsSloper, Patricia., University of York. Social Policy Research Unit.
The Physical Object
Paginationvii,144p. ;
Number of Pages144
ID Numbers
Open LibraryOL16245710M

  Abstract. Chronic childhood illness has great physical, social, and psychological impacts on children and their families across the globe. Despite global concerns regarding the welfare and needs of this population, relatively little is known about the actual prevalence and impact of chronic childhood illnesses in the Arab world. Kendall Kolne, Sunny Bui, Sally Lindsay, Assessing the environmental quality of an adapted, play-based LEGO ® robotics program to achieve optimal outcomes for children with disabilities, Disability and Rehabilitation, /, (), ().

  However, there is a gap in our knowledge about the role family, especially parents, and also friends play in the choice-making processes of disabled young people. Drawing on data from an English longitudinal study, this article begins to address this gap by exploring disabled young people's shared choice-making with parents and peers. For example, students with medical or physical disabilities do not qualify for special education unless they also demonstrate educational need. These children are still protected by Section of the Rehabilitation Act of , which governs all publicly supported agencies.

  Focus groups involving adolescents and young adults with cancer have noted particularly the importance of communication among family members regarding the illness and the adolescent's need to be heard by the healthcare team. 2, 15, 16 For those patients who are young adults, options regarding the level of family involvement in conversations. Vedi K. and Bernhard S () The Mental Health Needs of Children and Adolescents With Learning Disabilities Current Opinion in Psychiatry. 25(5) The pictures are by Beth Webb from When Dad Died and Jenny Speaks Out ; Lisa Kopper from Getting on with Epilepsy and Speaking Up for Myself; Catherine Brighton from Susan's Growing Up.


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The information needs of chronically ill or physically disabled children and adolescents by Bryony Beresford Download PDF EPUB FB2

To identify the information needs of chronically ill and physically disabled children and adolescents; including information relating to the condition and its management, as well as information about the impact of the condition on other aspects of the young person’s life.

To work with the research participants to develop recommendations. identify the information needs of chronically ill and physically disabled children and adolescents develop recommendations for good practice in the provision of information.

Findings Types of information need The information needs of chronically ill young people can be categorised into medical information needs (see Figure 1) or psycho-social.

The need for culturally competent care within gastroenterology services: Evidence from research with adults of South Asian origin living with inflammatory bowel disease Mukherjee, S. M., Beresford, B. A., Atkin, K. & Sebastian, S., 23 Jun Article in Journal of Crohn's and Colitis.

The information needs of chronically ill or physically disabled children and adolescents. By B. Beresford, T. Sloper and York Univ. (United Kingdom). Social Policy Research Unit. Abstract. Beresford, B.

& Sloper, T. (): The Information Needs of Chronically Ill or Physically Disabled Children and Adolescents. NHS BB/TS. Nursing Children and Young People, Key articles used for the development of the Me first model: Beresford, B.

and Sloper, T. The information needs of chronically ill or physically disabled children and adolescents. York: Social Policy Research Unit, University of York. Ha, J. and Longnecker, N. Among children and adolescents with chronic conditions, This paper reports the findings from a research project on the information needs of chronically ill adolescents, including their experiences of dealing with these needs.

were accessible to people with physical impairments. Communication and supplying information are the core elements in the care of chronically ill adolescents (Beresford & Sloper, ; Sterling, Nyhof-Young, Blanchette, & Breakey, ).

The Information Needs of Chronically Ill or Physically Disabled Children and Adolescents of the needs of disabled children and their families is essential for improving the quality and. The information needs of chronically ill or physically disabled children and adolescents Beresford, B.

& Sloper, P.,University of York, York: Social Policy Research Unit. Research output: Book/Report › Book. Mental disorders in children are quite common, occurring in about one-quarter of this age group in any given year.

The most common childhood mental disorders are anxiety disorders, depression, and attention deficit hyperactivity disorder ().; Although less common, developmental disorders and psychotic disorders in children can have a lifelong impact on the child and his or her family.

Every one of these papers focused on the families of chronically ill children, particularly the well sibling and what those children’s needs are. They spoke of support groups, information sharing and fostering resilience in these children and their families. Introduction. Living with a child with a long‐term condition can result in challenges above usual parenting responsibilities because of illness‐specific demands such as maintaining treatment and care regimes, social and financial constraints, and maintaining family relationships.

1 Two distinct areas of research have evolved in relation to exploring the impact of living with a child with a. Pain is an increasingly common symptom in children and adolescents.

Once recurrent pain leads to pain-related disability that affects a child’s functional, emotional and social well-being, it is consi Buy Physical Book Learn about institutional subscriptions.

Chapters Table of contents. Adolescents with a chronic condition have the same needs, and physical and psychosocial burden as their peers. Several studies have addressed this issue and provided evidence that these needs are often not adequately met or even ignored. 86, 87 Moreover, other studies have shown strong evidence that a comprehensive holistic approach improves.

Areas of Specialization anthropology and linguistics, childhood studies; chronic illness, communication and culture in the care of disabled, chronically and terminally ill children; psychosocial approaches to pain and suffering; applied work in healthcare communication; and multimodality and corporeality Overview of Research Ignasi Clemente, Ph.D.

is an anthropologist and a linguist. The population of children living with a chronically ill parent is increasing. Improvement and greater availability of life support systems have resulted in more patients with potentially fatal.

Beresford, B., Sloper, P. () The Information Needs of Chronically Ill or Physically Disabled Children and Adolescents.

York: Social Policy Research Unit. Google Scholar. Aasland A, Diseth TH. Can the Harter Self-Perception Profile for Adolescents (SPPA) be used as an indicator of psychosocial outcome in adolescents with chronic physical disorders. Eur Child Adolesc Psychiatry.

Jun; 8 (2)– Eiser C, Morse R. A review of measures of quality of life for children with chronic illness. Arch Dis Child.

Parents of children with chronic conditions and disabilities often carry a significant burden. They must monitor the child's health, check equipment, administer medications, provide physical therapy, and/or carry a child with mobility impairments, all tasks beyond the normal ones of parenting.

1 Certain characteristics of the child's disability, such as the severity of the disability and. California Community Parent Resource Centers Background. The Community Parent Resource Center (CPRC), as described in 20 United States Codewill help ensure that underserved parents of children, ages birth through twenty-six with disabilities, including low income parents, parents of limited English-proficient children, and parents with disabilities, have the training and information .Impact on the family.

There is a body of evidence documenting the stresses faced by parents of children with end-stage kidney disease and to a lesser extent parents of children with cystic fibrosis facing the need for transplantation [7, 9, 29].High levels of anxiety, depression and stress are reported among parents of these children [].Recent studies have identified PTSD symptoms among.OBJECTIVE.

We sought to inform decision-making for children and families by describing what is known and remains unknown about the impact of childhood critical illness and injury on families.

This report also was designed as a tool for research planning and design so that meaningful studies are performed and duplication is avoided. DESIGN. After a national scholarship competition and the.